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Welcome

Please welcome Dogtanian, our newest member.

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ImageWelcome to the Psoriasis Help Organisation, otherwise know as PHO. This is a web site dedicated to helping people suffering from the Chronic Skin Disease Psoriasis. This site contains information about Treatments, Handy Tips for living with the Psoriasis and other topics. This is a privately owned site (not a charity), run and administered by psoriasis sufferers, for psoriasis sufferers. We are not medical professionals, just enthusiastic amateurs, with a goal to provide an informative and friendly environment to learn about Psoriasis and discuss topics with others in similar situations. The primary idea for this site is to provide a discussion forum. A place where fellow Psoriasis sufferers can exchange views and advice on how to live with and treat Psoriasis.

There are many types of psoriasis including Guttate, Plaque, Pustular, Psoriatic Arthritis and Flexural Psoriasis which can affect most areas of the body including the Scalp, Genitals and Nails, both fingernails and toenails. We have some Pictures of Psoriasis which show most of the different types of psoriasis and locations on the body which it can appear. See the menu link on the left.

We also have information on many different types of treatment, Including PUVA, UVA, UVB, Biological, Systemic, Steroid and Non-Steroid based psoriasis treatments.  Many of these psoriasis treatments are discussed in greater detail in the Psoriasis Help Forum.
 

Click on "The Forum" Link on the left hand menu to enter the forum

 

Please use the forum to ask questions about Psoriasis that you would like answered, express views that you have regarding Psoriasis and discuss treatments that you have used or are interested in using. We encourage you to talk about anything that you feel may be beneficial to others and to become part of the friendly community that we have created. Psoriasis can be an isolating, depressing disease and it often helps to discuss your feelings with others that really understand.

 

About the founder and the reason behind the Website:

 

This is a privately funded, not-for-profit Website, that does not accept advertising. The founder of this Website, Michael, first discovered he had Psoriasis in 2000. Up until that point, his knowledge of the condition, its physical symptoms and its potential physiological impact, was minimal.

The rapid progression of the condition, from what could be considered mild to moderately severe in a few months caused great deal of angst.

After initially being misdiagnosed by his General Practitioner, he wanted to be able to understand what he could do to alleviate the symptoms or, hopefully, be cured. He discussed the condition with his GP, who was unable to offer a great deal of advice.

GPs often don’t have a great knowledge of Psoriasis, or skin conditions in general. The training they are given is very limited and, therefore, any advice they can offer is also limited. He was unable to get answers to his questions about the condition, e.g. what are the causes? What could he do to alleviate the problem and the symptoms? Could it be related to diet, stress or maybe alcohol?

Frustrated by the lack of information available from his GP, he looked to the Internet for answers. The wealth of information available online is often generated by large, pharmaceutical, organisations who lack the personal understanding that he felt the subject required. Another issue that became apparent, very quickly, were the numerous adverts and Websites that were offering "miracle cures". This combined with advice from well meaning friends and family, who all knew someone who had Psoriasis and how they "cured" it, became increasingly confusing and frustrating.

Michael wanted to be able to ask other sufferers about the condition, to gain advice and share experiences with other sufferers. Unable to find anything like this in the UK, he created the Website.

The Website is now frequently used and enjoyed by many members. It is thought to be the most important online 3rd party Psoriasis patient group in the UK. Michael and some of the Support Team often get invited to represent the interests of Psoriasis sufferers at many skin related conferences and meetings.

Psoriasis is often is a relentless disease, with many sufferers battling for years to keep it under control, whilst hoping that someone will develop a cure. Until that time the forum gives sufferer the opportunity to communicate with others who really do understand what it feels like. This can be a very depressing, isolating condition, and the more support and advice available, the better. You are not alone.

 

 

Newsflash

Member’s Experience of Enbrel.

ImageSince Enbrel became licensed for use in psoriatic/rheumatoid arthritis in Scotland, we have seen a small increase in the amount of forums and with the possibility of Enbrel and Raptiva gaining a UK license this year, we believe a personal experience from one of our members would be useful and informative, rather than having to read material from elsewhere.

Read more...
 
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